So! Today Brad and I met with the Rheumatologist to get a game plan on completing the diagnosis.
I will have an MRI of the left side of my body and an EMG on the right side of my body. These tests will look for muscle weakness and inflammation, which is associated with the myositis. Depending on the results I may or may not have a muscle biopsy to look for additional inflammation. These results will help the Dr.’s better understand how progressed the disease is in my system, and also double check of any other conditions that might be present and associated with the disease (sometimes they piggyback off each other). There is a chance that it has hardly progressed and we can stop it where it’s at now with medication. The Dr. did say that the fact that I have had this for 4-5 years is a good indication of a very slowly progressing disease. Either way, I will most likely begin medicinal treatment mid August, and I may also start some physical therapy to get my body stronger again.
I also had anther round of blood work done. I have no idea what they’re going to determine, but will share the results as I get them in the next week or so.
So as of today – I think that we can see a light at the end of the tunnel. Hopefully, everything will be squared away, the diagnosis can be complete and treatment can begin [with only follow-up appointments] in the next month! It would be nice to have the scary and unknown part all behind me by the big 3-0 so I can just concentrate on moving forward and being well!
Thank you for the support and positivity! I’ll keep you posted!
*Previously I was given a diagnosis from two separate biopsies done on the "Gottron's Papules" on my hands.