Written for my profile on MyositisSupport.org
I'm on the front end of week 12 with Azathioprine (Imuran) . I was told that it could take up to 12 weeks to show if it’s working or not. It's not. I’m really frustrated, and I feel worse than ever. I take 2 Tramadol in the morning and at night to help control the pain. I also take large amounts of ibuprofen to supplement the Tramadol on tougher days.
So, Tuesday I begin my next medication trial. I am a little nervous about which one it will be, but I just desperately want to feel better.
My hands are much better with the sporadic use of Triamcinolone as needed. I had Gottron’s Papules that got horribly inflamed and were so sore, but they are so much better now, thank goodness!