Saturday, September 22, 2012

It's Myositis Day!

...okay, yesterday was Myositis Day.  I am still celebrating!

Even though my relationship with my Myositis is heavy on the "hate" side of the whole "love/hate" thing, I still feel very connected to this crazy-ass disease and to others who struggle with it. 

One of the toughest things about dealing with my own diagnosis was not feeling like I had that immediate sense of support simply because none of my friends or family knew what a Myositis was.  I didn't look sick and I was pretty good at toughing it out at first, but as my first major flare took it's toll on my body and my mind, it was then that saw the face of the disease in myself and have been forever changed. 

I now understand the importance of sharing information about these rare diseases.  Awareness helps to flag down funding and research, but it also empowers people to inquire about and ask educated questions about their own health. 

If you would like to learn more, take a peek at some of these great resources:
The Myositis Association
Muscular Distrophy Association: Facts About Inflammatory Myopathies

To a wonderful year, and to our health!
XO, Maren