Tuesday, January 25, 2011

Update 1.25.11

Oh my god….I got an appointment at the Mayo Clinic!  AHHHHHHHHHHHHGGGGGGGGGGGGG!!!!
I can’t even believe it; I am so excited!  AND it’s in March – which is a month earlier than the appointment that had I just made with one of the doctors that has been in MplsSt.Paul magazine, Dr. Dorman at Rheumatology Consultants PA
I guess calling my Rheumatologist and flipping out to the appointment desk worked.  No more Mrs. Nice Gal! 
Only took 6 months of pleading with my doctors for me to lose it.  It's true that if you don’t stick up for yourself, no one will.  I was given the advice from the very start to keep track of every record for myself and to make sure that all parties always have the necessary information.  That was great advice.  Also great advice, "Stick up for yourself, and get what you need," from my Dad.
Just a few things to note from this past weekend.  My injection was about 100x better this week than it was last week.  I had very quickly improved on my technique, and I didn’t experience any nausea.  I did feel a little weird for the rest of the day (which is normal), but that has since passed.  A friend advised me to leave the needle in for 5 seconds which then nearly eliminated the problem of having any of the drug come back out of the injection site.  Fantastic.
I also stopped in to Sassafras, a nutritional store in Downtown White Bear Lake.  My weight recently starting dropping quickly (10lbs in 3 weeks) so I wanted to get something to supplement my diet.  While 10 pounds lost is a much welcomed change, I know that it isn’t healthy to lose that fast and wanted to make sure I had a handle on it.  Although “unexpected weight loss” is the one symptom of the disease that I don’t seem to have; I haven’t had an appetite for about 4-5 months now, so it had to happen sooner than later.  I got some drinks called Orgain, which are like an organic, supped up version of Ensure. A doctor created them when he got cancer and was going through chemo.  He wanted to have a nutritional supplement that would help keep him healthy.  They are very yummy and I will be happy to have one every day.  So far so good; I didn’t lost any more weight over the weekend.
Another item that I picked up there was this 25 servings of fruits and vegetables powder called Green Energy that I could add to the smoothies that I am already having every day.  This was a bad choice.  One teaspoon in my smoothie was so awful that it sent me into a 5 minute gag-a-thon.  That one will be going back.  *shudder with a slight gag*
The other item that I picked up this past weekend was a Barnes & Noble Nook Color!  It’s fun!  I wanted something to keep me company on the couch, and for that it does a great job.
Oh!  I almost forgot!  I am now officially working from home.  It’s only been for a few days so far and already my body is thanking me.  I am a little lonely, but hopefully I can get enough energy saved up to maybe do a little more on the weekend with friends.  Of course my pups are fantastic (have them both in my lap right now), and Brad is the most wonderful husband in the world; but sometimes you just need to be around people. 
I found myself trying to engage in an overly-friendly and corny conversation with the [uninterested] sales man at Barnes & Noble.  When I had a moment to hear myself I quickly snapped out of it and said, “Okay, those are all the questions I have, where do I buy one” and walked away.  I figured out the rest of my questions at home.
Other than that, the past few days have been highly productive and relaxed.  It is truly nice to be able to be gentler to this bod of mine; hopefully it will pay off.
Tally Ho!


  1. This is my first visit to your blog. I should've checked it out sooner but needless to say I finally made it. Congrats on your appointment at the Mayo Clinic! I am keeping you in my thoughts Miss Maren and sending lots of good vibes your way! XOXO

  2. Maren! First of all you still make me crack up. The thing about you having a conversation with the Barnes & Noble guy is priceless!!! You are one tough cookie! Keep up your positive spirits and know that I'm here if you need anything. Love you! I will visit you next week! :)