Wednesday, June 13, 2018

Happy Diagnosiversary to Me!

Longest putt to date for my Diagnosiversary - about 40'!
I am so proud to celebrate my 8th Diagnosiversay this year after raising $1125 for myositis awareness and support in the month of May! 

Myositis is often misdiagnosed or undiagnosed, so I choose to celebrate my day! 

This year I was able to spend my diagnosiversary golfing with my husband and having fun with friends.
I felt great and was tremendously grateful to be here!

Thank so to those who stepped up through my fundraiser and to those who have lifted me up and supported me and my family over the past 8 years. 

I really wasn't expecting such a raw and emotional response to donations to my fundraiser, but each one really touched me deeply in my heart. 
My original goal of $380 was blown out of the water with the generosity and love from friends from my past and present. I continue to feel deeply moved as I reflect on these gestures and cannot thank each person enough. 

It was a bittersweet Myositis Awareness Month, as I did begin to flare for the first time since 2015. I guess my body does need Azathioprine after all. 
A few weeks in on prednisone and I am finally starting to feel better, though. I hope that my counts look good at my check-up this week so that I can begin tapering off of this drug.

Each day is truly a gift. Whether you fight through it or you sore through it, we get each one to teach us such valuable lessons and breath life into our souls.

Being in the middle of a flare is so scary. I couldn't even bring myself to talk about it. As I feel myself coming through the other side, I see the value and lessons that it [oddly] adds to my life. It's a strange place to be in, just sitting around waiting to feel better and not knowing if it will get worse.

The scariest thing for me was actually starting prednisone and fearing the dark space that it took me to in 2015. Thankfully, I am not flaring that badly, and I am also not on the same dosage of prednisone. Looking back on that time of my life was hard though.
It makes this diagnosaversary extra special - I am able to look at my history with dermatomyositis and make decisions that I feel good about. I can reflect and reference the past 8 years and this blog as a guide. I don't have to sit on the sidelines with my life passing me by.

I am forever grateful for that scary day in 2010 that became my diagnosaversary!

If you would still like to contribute to Myositis awareness, research and support, visit Understanding Myositis or The Myositis Association.

Thank you from the bottom of my heart for your love and support.

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