It has been a little too long since I have posted an update so here we go!
I am excited to report that I have been making big strides in getting back to my old self. I am up to being out and about for 3-4 hours without flaring up. With each small increase in time, I have had to learn a little bit the hard way, but it has been worth it. I am also getting used to the modifications that I learned at Mayo to make the most of the time that I have both in and out of the house, and also to prevent flares.
I have been in physical therapy for almost 3 weeks now. I have had a little trouble with pain in my hips; but other than that, it's going great! Still having a hard time standing for extended periods, but stairs are no longer a problem and I don't think twice about missing a close parking spot! I can't tell you how good it feels just to be moving around. I danced at a friend's wedding last night, and I even wore heels for the first time in probably 8 or 9 months; so great!
I am pretty wiped out today; but like I mentioned, it's worth it! There is really nothing like being out and "feeling" like everything is fine. It's so great just to have fun and not worry about being sick. I honestly am believing that I'm not, which may be my most powerful weapon. I don't even want the work "sick" in my vocabulary anymore, I've moved on!
I check in this coming week with my regular Dr. to see if she still wants to increase my dosage of Neurontin. If she thinks that we can stop, than I'm closer to being able to possibly switch from Methotrexate to the much safer Plaquenil. Even though I hate taking my shot each week, I am really anxious to stop the MTX since it has been making me get better. I would imagine that I will continue to be watched closely whenever we do try to make a switch, but I do have my concerns.
So, the real test to see whether I over did it or not at the wedding last night will be if I am still wiped out tomorrow, and even possibly the next day. I have a good feeling though. In the past when I have done too much, I felt really rotten then next day, whereas today I just feel tired. Fingers crossed!
Looking forward to some sunny weather this coming week! Safe travels to those cabin-bound for the 4th!
As always, thank you for all the positivity and prayers; it means the world to me!
I always enjoy your updates and to hear that you can wear heels now is cause for celebration! I hope you had a great time at the wedding & boogied on down.
Love and hugs from SF,