It’s been two weeks since my last infusion, and tomorrow I
will receive my second round.
Everything went well the first time. I didn’t
die, so that’s a plus, I did wake up about every hour that night just to be
sure I was still here.
The infusion lasted exactly 5 hours. I was hopped up on Benadryl and Prednisone, so I could hardly keep my eyes open yet couldn’t fall asleep. I was home and in bed that afternoon and slept for 2 days! Other than being sleepy, I haven’t really felt any better or worse in the past couple of weeks (with the myositis – i.e. weakness, exhaustion), which is just fine. After my second infusion tomorrow I will start to anxiously await feeling any improvement.
The infusion lasted exactly 5 hours. I was hopped up on Benadryl and Prednisone, so I could hardly keep my eyes open yet couldn’t fall asleep. I was home and in bed that afternoon and slept for 2 days! Other than being sleepy, I haven’t really felt any better or worse in the past couple of weeks (with the myositis – i.e. weakness, exhaustion), which is just fine. After my second infusion tomorrow I will start to anxiously await feeling any improvement.
Since the infusion though, I think that my fibro has been flared, which is annoying. I haven’t really had to deal with any fibro stuff since the myositis flare started. I am super forgetful and have pain in my joints from it – I’m scatter-brained and am having a really hard time putting this post together, which is unlike me. I have a feeling that I brought it on myself by over indulging in some foods that have been known to trigger inflammation (i.e. sugar, cheese, tomatoes).
Once I get rolling out of the current myositis flare, I am really going to dive into working on incorporating some of the autoimmune protocol into my diet (more on this later)… if you can’t wait until “later” click here.
I can’t thank you enough for supporting me through this.
Hopefully this will soon be just a memory. Even though I can’t remember what I am supposed to be doing from moment to moment,
I have truly appreciated the prayers, FB notes, calls, texts, emails and surprises
(both me and my pups have received some really sweet treats from secret
admirers that were a very unexpected surprise that we all loved)!
Once my head
is screwed back on straight, I promise that I will return messages and get my
sh#t back together to properly thank you all.
Wish me luck tomorrow – I hope that this round goes just as well as the first.
Wish me luck tomorrow – I hope that this round goes just as well as the first.
XO, M
